Entries by nadzor

7th EC meeting 2019 in Izola, Slovenia

We are organizing an extended EAMDA executive committee (EC) meeting between October 18 and 20, 2019, at the Rehabilitation Center in Izola, Slovenia. The topic of the meeting will be related to the AGA in 2020, the construction of educational programs for people with NMD and the substantive preparation of EAMDA strategic development guidelines for […]

September 27, 2019 by

EAMDA Youth camp 2019

When? From 14th to 21st July 2019 We are pleased to invite you to beautiful and sunny Croatia, to be part of EAMDA YOUTH CAMP 2019, the seven-day Camp for young people with neuromuscular disorders in Mare Center, Rovinj, Croatia from 14th to 21th July 2019. Where? Rovinj, Croatia Rovinj is a city in Croatia […]

May 25, 2019 by

Duchenne and You

Duchenne and You is a resource dedicated to those who have had their lives touched by Duchenne muscular dystrophy. Visit the site http://duchenneandyou.eu/

March 20, 2019 by

New EAMDA scientific publication published

We are glad to announce that new EAMDA scientific publication on EAMDA 46th AGA in Zagreb has been published. You can find it under the Publication section of our webpage and you are welcome to download it for free. If you prefer to receive also hard copies, do not hesitate to get in touch with […]

October 7, 2018 by

EAMDA 47th AGA successfully finished

EAMDA 47th Annual General Assembly (AGA) took place between 20th and 23rd September, 2018 in Prague, Czech Republic (Clarion Congress Hotel). The event has been traditionally divided into three parts: medical, social and administrative part. Within the medical part, top experts in the field of neuromuscular disorders (NMD) from all over the Europe have been […]

September 29, 2018 by

Today is World Duchenne Awareness Day

Everybody around the world will raise awareness for Duchenne Muscular Dystrophy on September 7th. This year, the WDAD theme is Standards of Care. There is a compelling need to ensure that wherever they are in the world, individuals affected by this condition can benefit from a Standard of Care that is informed by the best […]

September 7, 2018 by

In memoriam: Boris Sustarsic

Boris Šuštaršič, the founder of the Muscular Dystrophy Association of Slovenia, passed away on Saturday, 25 August 2018, in Izola. We are deeply saddened and shocked by the sad news, having hoped his health would improve despite the illness that he had suffered for the past few weeks. His name has been strongly connected with […]

August 27, 2018 by

Care-for-Rare Science Award 2018

The Care-for-Rare Foundation at the Dr. von Hauner Children’s Hospital of the Ludwig-Maximilians-Universität München launches again this year the Care-for-Rare Science Award 2018. The Care-for-Rare Science Award is endowed with 50,000 Euro and should give scientists the chance to initiate a basic or a clinical research project in the field of rare diseases. A disease […]

July 3, 2018 by

HIBM – GNE myopathy Istanbul meeting

Neuromuscular disorders association of Turkey is organizing the HIBM – GNE myopathy Istanbul meeting which will be held in Istanbul between 7th and 8th May, 2018. For meeting program and other details please visit the Neuromuscular disorders association of Turkey.

April 25, 2018 by