• EAMDA Youth camp 2019

    From 14 to 21 July 2019

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  • Duchenne and You

    Duchenne and You is a resource dedicated to those who have had their lives touched by Duchenne muscular dystrophy.

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Latest news

EAMDA 47th AGA successfully finished

EAMDA 47th Annual General Assembly (AGA) took place between 20th and 23rd September, 2018 in Prague, Czech Republic (Clarion Congress Hotel). The event has been traditionally divided into three parts: medical, social and administrative part. Within…

Today is World Duchenne Awareness Day

Everybody around the world will raise awareness for Duchenne Muscular Dystrophy on September 7th. This year, the WDAD theme is Standards of Care. There is a compelling need to ensure that wherever they are in the world, individuals affected…

In memoriam: Boris Sustarsic

Boris Šuštaršič, the founder of the Muscular Dystrophy Association of Slovenia, passed away on Saturday, 25 August 2018, in Izola. We are deeply saddened and shocked by the sad news, having hoped his health would improve despite the illness…

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