• EAMDA Youth camp 2019

    From 14 to 21 July 2019

  • Duchenne and You

    Duchenne and You is a resource dedicated to those who have had their lives touched by Duchenne muscular dystrophy.

    Visit site

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Latest news

Care-for-Rare Science Award 2018

The Care-for-Rare Foundation at the Dr. von Hauner Children’s Hospital of the Ludwig-Maximilians-Universität München launches again this year the Care-for-Rare Science Award 2018. The Care-for-Rare Science Award is endowed with 50,000 Euro…

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We are happy to announce that we are on Facebook. You are welcome to join us there.

HIBM - GNE myopathy Istanbul meeting

Neuromuscular disorders association of Turkey is organizing the HIBM - GNE myopathy Istanbul meeting which will be held in Istanbul between 7th and 8th May, 2018. For meeting program and other details please visit the Neuromuscular disorders…

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