ERN on priorities and contra-indications for COVID-19 vaccinations

European Reference Networks (ERNs) is formed by experts in rare diseases. All ERNs provided their opinion on the priorities and contraindications for patients with a rare disease within their network. The results are summarized in this document and were discussed during the internal ERN-Coordinator group meeting of January 27th, 2021. For more please read this […]

WHO: Clinical management of COVID-19.

This guidance document is intended for clinicians caring for COVID-19 patients during all phases of their disease (i.e. screening to discharge). This update has been expanded to meet the needs of front-line clinicians and promotes a multi-disciplinary approach to care for patients with COVID-19, including those with mild, moderate, severe, and critical disease. The following […]

Manifesto on the importance of vaccination for patients with chronic conditions

The European Patients’ Forum, an umbrella organisation representing 72 member organisations across the European Union, calls on policymakers and other stakeholders to take into account the importance of vaccination for patients with chronic conditions. See the link: Manifesto on the importance of vaccination for patients with chronic conditions

WMS advice on vaccines:
COVID-19 and people with NMD
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Latest news

INTERNATIONAL CONFERENCE ON NMD 2020

We are announcing International conference on NMD to be organized online between 9th and 10th December 2020. Please follow this link for details and save the date: http://www.eamda.eu/international-conference-on-nmd-2020/

Beyond the borders of your abilities – mission possible!

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Summer is a great time to travel and explore new places. Unfortunately, traveling is not always possible for people with neuromuscular disorders in Bulgaria. The reason for this is because of the inaccessible environment and difficult access…

World Duchenne Awareness Day 2020

EAMDA is supporting activities towards awareness about Duchenne (DMD) and Becker Muscular Dystrophy. Please visit WDO webpage and see the wonderful video - Together, we are stronger: https://www.youtube.com/watch?v=JCCZUMcKgiY

EAMDA partners