Jana Popova is PhD student and freelance journalist. In 2014, she graduated from the Faculty of Journalism and Mass Communication at the University of Sofia – “St. Kliment Ohridski”. Since 2011 she has been working as freelance journalist for different online media in Bulgaria. In 2016, she started her PhD program at Sofia University in the field of mass communication and book publishing. She is author on different articles about social policies, health system, education and different aspects of the daily life of people with neuromuscular disorders. Her personal interests are in the field of media development and digital communications.
As a patient with neuromuscular disorder, she is active member of the Bulgarian Association for Neuromuscular Diseases. She is involved in different activities, organized by the Bulgarian Association for Neuromuscular Diseases. She supports all Bulgarian patients’ organizations for neuromuscular disorders.
In October 2017, she became member of the EAMDA Executive Committee. She believes that her position as EAMDA EC member is great honor and incredible opportunity to develop the cooperation between different European patients’ organizations for neuromuscular disorders.
At the beginning of 2018 she became a member of the EPF Youth Group. Jana believes that her position as a member of the EPF Youth Group is big honor and it will help to increase the awareness about Neuromuscular Disorders in the society. She thinks that this is great opportunity to enhance the cooperation between different European organizations and to pay more attention on the problems of people with NMD. Jana believes that people with neuromuscular disorders should raise their voices and they should stay united if they want to improve their quality of life.
She is recipient of the EURORDIS Black Pearl Award for Young Patient Advocate in 2020.
Sharing experiences and cooperation is essential part for our work and only if we stand together, we can achieve better results and we can become stronger members of the society.