EAMDA

European Alliance of Neuromuscular Disorders Association (EAMDA) brings together neuromuscular disorders associations from across Europe, advocating for the rights and interests of people living with NMDs, raising awareness, promoting research and knowledge sharing, helping reduce the effects of disability, and supporting the development of new therapies for neuromuscular disorders.

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Current activities

International Conferences on NMD

EAMDA’s International Conferences on NMD are two-day events dedicated to sharing scientific knowledge of neuromuscular disorders and build the awareness among the patient community while bridging the expertise from across Europe.

Workshops

Workshops and webinars deepen knowledge of a specific topic related to neuromuscular disorders.

Youth Camps

Youth Camps for people with neuromuscular disorders offer not only fun, but also an excellent opportunities for integration and experience sharing between countries.

Publications

EAMDA’s publications provide reliable, up-to-date information for both healthcare professionals and people living with NMDs.

International Conference on NMD 2025

23 November 2025

EAMDA Scientific Conference 2025, held online on 27–28 November 2025, brings together key stakeholders in the neuromuscular field, including clinicians, researchers, healthcare providers, patient organizations, individuals with lived experience, and representatives from the pharmaceutical sector, to...

Thanks to partners

2 November 2024

EAMDA extends its appreciation to Roche, Biogen and Alexion Pharmaceuticals, Inc. for their continuous commitment and generous support in organizing “Advancing Together: Shaping a Brighter Future for NMD Patients” Workshop in Ljubljana. With their partnership, we successfully brought together pat...

Advancing Together: Shaping a Brighter Future for NMD Patients

27 October 2024

On 25–26 October 2024, EAMDA hosted the “Advancing Together: Shaping a Brighter Future for NMD Patients” Workshop in Ljubljana, Slovenia—a capacity-building event, dedicated to our member organizations. We brought together patients, patient representatives, pharma partners, and other interested stak...

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