EAMDA current and past activities encompass a range of projects whose common denominator is the long-term benefit for all those affected by a neuromuscular disorder.
The following activities remain a particular focus of EAMDA:
- International Conferences on Neuromuscular Disorders, bringing together clinical experts, NMD patient leaders, regulators, and the pharmaceutical industry. Organised annually since 2020, they evolved from scientific seminars held until 2019 during EAMDA’s Annual General Meetings.
- Workshops and webinars, focused on topics of relevance to the people living with neuromuscular disorders.
- (Until 2019) Youth Camps that bring together young people living with NMDs from countries represented by EAMDA Members,
- Cooperation with European organisations aligned in aims.
- Supporting the development of therapies and devices that have a potential to benefit people living with neuromuscular disorders.
- Building the awareness of neuromuscular disorders among the regulators and the general public alike across Europe; an example being a series of radio programmes aired in 2021.
- Supporting regulatory reforms both on national and on European level to benefit people living with NMDs and their carers.