EAMDA is proud to join hands with many national neuromuscular disorders associations from across Europe. Our current Members are:
Българска асоциация за невромускулни заболявания
Bulgaria
The Bulgarian Association for Neuromuscular Diseases (BANMZ) is an independent non-political voluntary organisation founded to meet the needs of people affected by neuromuscular diseases.
Savez društava distrofičara Hrvatske
Croatia
The Muscular Dystrophy Association of Croatia (SDDH) is a non-partisan, voluntary and non-profit association founded in 1970, consisting of a network of 27 associations operating in Croatia, whose main goal is to improve the quality of life of people affected by muscular dystrophy and related neuromuscular diseases.
Asociace muskulárních dystrofiků v ČR
Czech Republic
The Czech Muscular Dystrophy Association (AMD-MDA) is a nationwide association that brings together people affected by muscular dystrophy and other neuromuscular diseases, working to increase their social integration, support them in maintaining the best possible quality of life, and advocating for quality multidisciplinary care.
Muskelsvindfonden
Denmark
The Danish Muscular Dystrophy Foundation works to support people with muscular dystrophy and their families through forming networks and communities, sharing experiences and lessons learned, gathering knowledge, and providing assistance that cannot be provided by public authorities.
Polskie Towarzystwo Chorób Nerwowo-Mięśniowych
Poland
The Polish Neuromuscular Diseases Association has operated since 1989, supporting people living with genetic neuromuscular diseases.
Fundacja SMA
Poland
SMA Foundation Poland brings together families affected by spinal muscular atrophies (SMA), working towards a better standard of care, access to modern therapies, and an overall improvement of the quality of life for people living with SMA and their near and dear ones.
Neuro Move CMT
Romania
Founded in 2019, Neuro Move CMT aims to inform, support and improve the quality of life for people living with Charcot–Marie–Tooth peripheral neuropathy and other similar neuromuscular diseases which affect independent mobility and psychosocial functioning.
Савез дистрофичара Србије / Savez distrofičara Srbije
Serbia
Founded in 1968, the Serbian Muscular Dystrophy Association protects the rights and interests of people with muscular dystrophy living in Serbia through its 20 regional branches.
Belasý motýľ
Slovakia
White Butterfly, established in 1993 and known as “Organisation for People with Muscular Dystrophy in Slovak Republic” until 2024, is the only organisation in Slovakia that brings together children and adults and their families with various neuromuscular diseases, working to alleviate the impact of severe physical disability.
Društvo distrofikov Slovenije
Slovenia
Since its establishment in 1969, the Muscular Dystrophy Association of Slovenia has been a national organisation representing people with disability, achieving successes in the field of regulations, healthcare, economic support, training, housing, and social participation.
Türkiye Kas Hastalıkları Derneği
Türkiye
The Turkish Muscular Dystrophy Organisation (KASDER) is a rights-based non-governmental organisation working since 1978 to raise public awareness about neuromuscular diseases, providing financial support to people with muscular dystrophy, funding treatment and medical devices, offering psychosocial support, and promoting social inclusion.