Author: Administrator

Join us for EAMDA’s 2023 International Neuromuscular Conference, held in person! This year’s conference will take place on September 30th & October 1st, in Bucharest, Romania. Discover the latest breakthroughs in neuromuscular disease research & treatments on the medical day and have the opportunity to improve your network and build stronger patient communities on the social day. Find more details, agenda and registration link here: https://eamda-ic2023.eu

EAMDA's SMA Webinar Dear Friends, Partners and Member Organizations, We are pleased to invite you to the upcoming SMA Webinar hosted by EAMDA on Wednesday, August 30th, starting with 18:00 CET. During this webinar, esteemed experts will delve into important topics shaping the landscape of Spinal Muscular Atrophy research and treatment. Agenda Clinical Trials in SMA: Exploring Progress and Prospects Advancements in SMA Treatments: A Comprehensive Overview Newborn Screening for SMA: Impact and Implementation Registration To register for this event, please visit the following registration link: Register We look forward to your participation and insightful contributions! Feel free to share this invitation with…

It is our distinct pleasure to extend an exclusive invitation to your esteemed organizations to take part in the forthcoming EAMDA International NMD Conference 2023! Date: September 30th - October 1stLocation: Ramada Plaza by Wyndham Bucharest Hotel, Bucharest, Romania This conference represents a pivotal moment in advancing our shared mission of enhancing knowledge, collaboration, and progress within the NMD community. It is a platform where patients, patient representatives, medical professionals, researchers,  industry experts and key stakeholders will converge to explore the latest breakthroughs, pioneering treatments, and innovative strategies that will shape the future of neuromuscular diseases care. Why Attend? Gain Insights: Immerse…

Unique way to learn, exchange knowledge and be informed about Neuromuscular Disorders (NMD) One of the most important activities EAMDA is conducting each year is The International Conference on NMD, dedicated to medical professionals, patients, caregivers, connected stakeholders, as well as general public. This is a unique opportunity to learn, exchange knowledge and expertise, be informed about Neuromuscular disorders (NMD) and have access to latest updates in the field! The International Conference on NMD 2022 is a two-days educational event, divided into two parts:  International conference on NMD – lasting two days – open to the public;  Satellite medical symposium – open…

A conference program has been published. For details visit https://www.eamda.eu/international-conference-on-nmd-2021/

August is SMA Awareness month! EAMDA is going to contribute and support people with SMA, through an innovative and exciting project: SMA Awareness NFT Art Gallery. The aim of our project is to raise awareness about SMA and give SMA community a stronger voice, as well as to raise funds for SMA participants and for EAMDA projects. What do you need to do to participate in our project? Spread the word into your SMA community and encourage people to send us photos/scans/ videos of their unique works of art: drawings, paintings, collages, digital illustrations, creative videos, music or any other artistic pieces that represents their own SMA…

We have successfully launched a new program called Educational Radio Program for NMD Community 2021. Find more on host countries, show dates, and much more. More details