45th AGM successfully finished

45th AGM successfully finished

Between 24 and 27 September, 2015 EAMDA organized 45th Annual General Meeting in Belgrade. Friday, September 25 we were able to attend very interesting medical conference with world-renowned lecturers, who had great presentations on the topics important for people with neuromuscular disorders. According to the program, Saturday, September 26 has been dedicated to the social topics and exchange ideas. We would like to thank all participants for attendance.
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Joint letter on ataluren (Translarna)

We are very happy to announce that EAMDA, Parent Project Muscular Dystrophy and European Organisation for Rare Diseases - EURORDIS have signed a joint letter in January 2014 on the negative opinion on conditional approval of ataluren (Translarna) that was sent to the Committee for Medicinal Products for Human Use of the European Medicines Agency. The joint effort resulted in that EMA granted conditional approval for ataluren.
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World Duchenne Awareness Day

World Duchenne Awareness Day

With initiative of United Parent Project Muscular Dystrophy, EAMDA and other world wide known organizations supports activities followed by announced World Duchenne Awareness Day, 7th of September 2014. This day will be a focal point for the worldwide Duchenne Muscular Dystrophy community with the aim to bring this devastating condition to the attention of a wider global audience. More information you can find by visiting this page.
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EAMDA representatives on visit to Mr. Milan Bandic, mayor of Zagreb

EAMDA representatives on visit to Mr. Milan Bandic, mayor of Zagreb

On 7th October, 2013, the last day of 43rd AGM, EAMDA representatives were invited to the city hall of Zagreb. The mayor of Zagreb Mr. Milan Bandic with his coworkers welcomed the delegates. The mayor said that he is an honorable member of various national organizations in Croatia similar to EAMDA and that he is especially honoured to be part of particular this one. He said that city of Zagreb is on the level of all European capitals in aspect of standards for people with disabilities.  Ms. Marica Miric, the President of Association of muscular dystrophy societies of Croatia thanked…
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43rd AGM successfully finished

43rd AGM successfully finished

We have spent wonderful and productive days in Zagreb where 43rd took place between 4th and 7th October, 2013. Presentations of medical and social part of the program are available here while photos are available in our image gallery. At this point we would like to thank all participants who made a conference interesting and on the high professional level.
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New EAMDA EC members

New EAMDA EC members

On 43rd AGM (October 5th, 2013) the following Executive Committee (EC) members were elected for 4-year mandate. Elected EC memers are (from left to right): Ivanka JOVANOVIC, Boris SUSTARSIC, Marguerite FRICONNEAU, Michal RATAJ, Tomislav GOLL, Mgr. Dona JANDOVA ZALMANOVA, Luka ZAHARIJA. Contacts of EC members are available here.
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