Boris Sustarsic was born in 1945 in Ljubljana, the capital of Slovenia. His life has been crucially marked with disability which has broken out at the age of two, when he did not manage to stabilize gait the way other children do. He suffers from a hereditary progressive neuromuscular disorder (NMD), which has put him into a wheelchair when he was eleven.
Despite his disability, with a great help of his parents, he managed to finish his primary school education and to graduate from a secondary school to be able to study at university. He registered at the University of Ljubljana, where he studied English and French for two years but he abandoned his studies in 1966 when he was appointed chairman of the newly founded Muscular Dystrophy Association of Yugoslavia, and three years later of the Slovenian Association as well. All his work has ever since been subjected to the organized activities in the Slovene association (Muscular Dystrophy Association of Slovenia) and to co-operation with other groups and associations of disabled people. For many years he has been forming a system of a strong and branched out, economically strong and humane policy of taking care of people with special needs. The capability of linking separate spheres in new unities has brought him as far as to being the chairman of the National council of the disabled persons’ associations of Slovenia, where he has essentially contributed to the way and extent of co-operation among different groups of the disabled.
His life has been filled with a unique way of accepting his own disability. He has decided to gain specific knowledge on the matter to realize numerous ideas and realize them to make them reachable for the disabled. In 1980 he established a company for disabled, called Birografika Bori in Ljubljana, and in 1987 another company in Izola, called Dom dva topola. He strenghtened the co-operation among Slovene disabled’ groups which present the strongest and loudest adversary in the discussions with the government regarding the conditions and interest of the disabled in the society. He was chairman of the Yugoslavian Association of companies for employing disabled people and now he is on duty in the Slovene Association. He contributed to the fact that in the late 1980s the Slovenian companies for employing disabled people turned into a market economy, with a distinctive systematic and financial support of the government.
Boris Sustarsic has definitely become an expert on effective management in the field of disability affairs, where he combines practical and theoretical work as well as motivation of numerous social inovations. He is the author and coauthor of many articles, presentations and radio broadcasts considering the disabled. His contribution to the still valid development strategy for the disability affairs, approved by the Slovene government and parliament in 1992. He was namely appointed the chairman of the board that drew the document up by the Slovene government.
Being the manager of Birografika Bori he realized, in 1989 already, the importance of digital technology for the colour and black and white printing, as well as for data-processing together with use of intelligent systems. This way he essentially influenced on the development of this company for the disabled that employs the disabled that are least likely to be able to get a job due to their disability.
In 1992 he was elected in to the National council of the Republic of Slovenia and was re-elected in the year 1997, 2007 and again in 2017. Beside the general state affairs he puts much effort into arranging the state regulations in favour of a better life for the disabled and the elderly residents. He strives to keep Slovenia a social state in the sense of the second article of the constitution and to form a social politics which would ensure the disabled people an adequate support.
He is very active in the field of legislation. There is no systematic or definite legal solution in favour of disabled’ companies to which he wouldn’t have contributed at all. The importance of his work is also visible in the fact that he was awarded for the achieved success in the field of disability affairs by the Ministry of Labour, Family, Social Affairs and Equal Opportunities. With his work he proves that the activities of people with NMD to solve their own social scrapes are the first and main principle of a successful social integration.