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Latest news

Today is World Duchenne Awareness Day

Everybody around the world will raise awareness for Duchenne Muscular Dystrophy on September 7th. This year, the WDAD theme is Standards of Care. There is a compelling need to ensure that wherever they are in the world, individuals affected…

In memoriam: Boris Sustarsic

Boris Šuštaršič, the founder of the Muscular Dystrophy Association of Slovenia, passed away on Saturday, 25 August 2018, in Izola. We are deeply saddened and shocked by the sad news, having hoped his health would improve despite the illness…

Care-for-Rare Science Award 2018

The Care-for-Rare Foundation at the Dr. von Hauner Children’s Hospital of the Ludwig-Maximilians-Universität München launches again this year the Care-for-Rare Science Award 2018. The Care-for-Rare Science Award is endowed with 50,000 Euro…

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