We announce that 44th AGM will be held in Ljubljana, Slovenia between 25 and 28 September, 2014. Detailed information along with the application form, program and other documents will be published in the near future on our webpage.
On 7th October, 2013, the last day of 43rd AGM, EAMDA representatives were invited to the city hall of Zagreb. The mayor of Zagreb Mr. Milan Bandic with his coworkers welcomed the delegates. The mayor said that he is an honorable member of various national organizations in Croatia similar to EAMDA and that he is especially honoured to be part of particular this one. He said that city of Zagreb is on the level of all European capitals in aspect of standards for people with disabilities.
Ms. Marica Miric, the President of Association of muscular dystrophy societies of Croatia thanked to the mayor for his significant support he and his coworkers are especially showing to the people with neuromuscular disorders (MDA). Therefore people with MDA can easily use public transport (accessible trains and buses), cultural and sports activities in Zagreb as well as swimming area on the Adrtiatic and completely accessible lake Bundek. She also added that Mr. Bandic as a mayor is conducting systematic policy to all people and that his 24/7 personal availability to people with NMD should be an example to all mayors of European capitals.
The President of EAMDA, Mr. Boris Sustarsic stressed out that orderliness and accessibility categorize Zagreb as a modern city with well thought-out concepts and ambitious projects in the coming years. Thanks to the science and modern medicine people with MDA has longer lifespan, and they want to realize their active social role. In many cases people with MDA demonstrate above average cognitive skills, but only if they are adequately educated, are able to get a job and become effective to the whole society. Thus, such activation of human resources results in a certain social and economic benefits for both – people with NMD and the city of Zagreb. Mayor Bandic has also accepted Mr Sustarsic’s suggestion to provide accessible facilities in new part of Zagreb aimed at developing al the activities of the Croatian Association of people with NMD.
We have spent wonderful and productive days in Zagreb where 43rd took place between 4th and 7th October, 2013. Presentations of medical and social part of the program are available here while photos are available in our image gallery. At this point we would like to thank all participants who made a conference interesting and on the high professional level.
On 43rd AGM (October 5th, 2013) the following Executive Committee (EC) members were elected for 4-year mandate. Elected EC memers are (from left to right): Ivanka JOVANOVIC, Boris SUSTARSIC, Marguerite FRICONNEAU, Michal RATAJ, Tomislav GOLL, Mgr. Dona JANDOVA ZALMANOVA, Luka ZAHARIJA. Contacts of EC members are available here.