We are very happy to announce that EAMDA, United Parent Projects Muscular Dystrophy and European Organisation for Rare Diseases - EURORDIS have signed joint letter on Re-examine January 2014 Negative Opinion on Conditional Approval of Ataluren (Translarna) sent to Committee for Medicinal Products for Human Use at European Medicines Agency (EMA). The common effort resulted that EMA granted Conditional Approval for Ataluren (Translarna). The full version of the letter is reachable HERE.
On 7th October, 2013, the last day of 43rd AGM, EAMDA representatives were invited to the city hall of Zagreb. The mayor of Zagreb Mr. Milan Bandic with his coworkers welcomed the delegates. The mayor said that he is an honorable member of various national organizations in Croatia similar to EAMDA and that he is especially honoured to be part of particular this one. He said that city of Zagreb is on the level of all European capitals in aspect of standards for people with disabilities.
We have spent wonderful and productive days in Zagreb where 43rd took place between 4th and 7th October, 2013. Presentations of medical and social part of the program are available here while photos are available in our image gallery. At this point we would like to thank all participants who made a conference interesting and on the high professional level.