International Conference on NMD 2022 (virtual)
SMA NFT Gallery
SMA Awareness NFT Art Gallery by EAMDA: My SMA Journey
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Latest news

Guidance on shielding and protecting people defined on medical grounds as extremely vulnerable from COVID-19

Background and scope of guidance This guidance is for people, including children, who are at very high risk of severe illness from coronavirus (COVID-19) because of an underlying health condition, and for their family, friends and carers.…

Coronavirus (COVID-19) information for people with NMD

As there are currently no guidelines available for people with NMD on Coronavirus (COVID-19), we would like to share some general information on the disease with focus on some NMD specific diseases. People with special health care needs, especially…

Jana Popova is the recipient of the EURORDIS Black Pearl Award 2020

On 18th February 2020, Jana Popova, EAMDA EC member, attended the EURORDIS Black Pearl Awards. The event was organized to celebrate the work of decision makers, scientists, patients advocates and volunteers. This was unique opportunity to exchange…

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