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SMA NBS Alliance published whitepaper
NewsSMA NBS Alliance published a whitepaper and call of action on the need for newborn screening for Spinal Muscular Atrophy (SMA). More information you can find on https://www.sma-screening-alliance.org/

EAMDA has 2 new advocacy experts
NewsEAMDA has 2 new advocacy experts in medicines research, development and therapeutic innovation!
Jana Popova, EC Member of EAMDA and member of the Bulgarian Association for Neuromuscular Diseases and Arabela Acalinei, secretary of EAMDA and…

New disease awareness website ‘Duchenne and you’
NewsThere is an updated version of 'Duchenne and you' website available for you to visit at https://duchenneandyou.eu/
Welcome to visit the site and get useful information on DMD (articles & videos included).