EAMDA established secretariat office

We have established secretariat office to provide solution on expansion of our activities. In that way, we believe to make our organization more recognizable and accessible to the community. For secretariat office contacts please check the following link http://www.eamda.eu/secretariat/

ERN on priorities and contra-indications for COVID-19 vaccinations

European Reference Networks (ERNs) is formed by experts in rare diseases. All ERNs provided their opinion on the priorities and contraindications for patients with a rare disease within their network. The results are summarized in this document and were discussed during the internal ERN-Coordinator group meeting of January 27th, 2021. For more please read this […]

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Latest news

BNMDA Summer Camp 2018

Bulgarian Association for Neuromuscular Diseases organizes Annual Summer Camp for people with Neuromuscular disorders. The camp is appropriate for people with NMD from all ages. The Summer Camp will start on 23rd of July 2018 and it will take…

The MDA RIDE Celebrates 10 Years: A Success Story

The MDA RIDE is a group of people who decided to help persons with neuromuscular disorders in the Czech Republic. The MDA RIDE is a charity event associated with a public fundraising to help individuals with muscular dystrophy associated…

New EAMDA webpage

After some time we finally managed to launche a new EAMDA webpage. Our direction was to be the page for user to get general information about our work, our connections to European neuromuscular disorders associations and other partners that…

EAMDA partners