BNMDA Summer Camp 2018

Bulgarian Association for Neuromuscular Diseases organizes Annual Summer Camp for people with Neuromuscular disorders. The camp is appropriate for people with NMD from all ages. The Summer Camp will start on 23rd of July 2018 and it will take place in Minkovi Bani, hotel complex in Montana Province, northwestern part of Bulgaria. The hotel complex is close to the mountain peak Todorini Kukli and it provides good opportunities to spend nice and relaxing time close to the nature.

This place is deliberately chosen. It attracts people with NMD with accessible environment, clean air, beautiful nature, different opportunities for spa and rehabilitation procedures and 3 swimming pools with mineral water, which enhance the rehabilitation process. Also it provides many opportunities for entertainment. During the camp Bulgarian Association for Neuromuscular Diseases organizes interactive games, which help participants to get to know each other better and to develop their physical abilities. There is annual exhibition at the end of the Summer Camp and all participants have to paint something or do some kind of art, in order to take part in it. This exhibition is one of the most important events during the camp. Everyone has to present its art and there are awards for all participants. Also during the Summer Camp Bulgarian Association for Neuromuscular Diseases organizes different activities for entertainment. The second evening in the Summer Camp is called “Evening of the talents”. During this evening participants with special talent (people, who can sing, act or write) represent their work and organize performance for the whole group. Also every day there are different games and all participants have to be involved in them. At the end of the Summer Camp there is farewell party. This Summer Camp is great opportunity for people with NMD to meet new friends and to exchange useful information.

Bulgarian Association for Neuromuscular Diseases has organized the Annual Summer Camp more than 10 years. The main purpose of the camp is to gather together people with NMD and to help them to cooperate between each other. This camp also provides opportunity for people with NMD to present their work and to become more involved in the organization. That’s why Bulgarian Association for Neuromuscular Diseases receive special award for the organization of the Summer Camp from the Bulgarian journalistic community. The Annual Summer Camp helps people with NMD in Bulgaria to enjoy nice activities during the summer and to feel that they are part of bigger community.

The MDA RIDE Celebrates 10 Years: A Success Story

The MDA RIDE is a group of people who decided to help persons with neuromuscular disorders in the Czech Republic.

The MDA RIDE is a charity event associated with a public fundraising to help individuals with muscular dystrophy associated in the Muscular Dystrophy Association in the CZ (AMD ČR) and the Parent Project. MDA RIDE organizes a public fundraising whose revenues are used for individual help to people with muscular dystrophy and to support the activities of these organizations.

On June 16th 2018 on Wenceslas square in Prague will take place the 10th motorcycle charity event in the Czech Republic, the only such project in the EU and the second one in Europe (after the Swiss Love Ride). Enjoy a great party full of live performances and the traditional Graceful Ride through Prague.

Free entry.

Follow www.mdaride.cz/en or amd-mda.cz for details.

New EAMDA webpage

After some time we finally managed to launche a new EAMDA webpage. Our direction was to be the page for user to get general information about our work, our connections to European neuromuscular disorders associations and other partners that we are cooperating with. We have would also efforts to create page visually as attractive as possible and on the other side to provide you with key information related to our activities. Your feedback would be much appreciated and please send it to info (at) eamda.eu